Saturday, October 06, 2007

Spiritual Adversity & Health Care Post Script

I wouldn’t have posted a series on this subject if I thought the personal story I included was a rare hiccup in a well-run health care system. “HMO horror story” has become a cliché over the last couple decades because people around the nation have similar experiences every day.

With the federal government abdicating responsibility, individuals and families who’ve been run over by their health insurance companies and still have the will, energy, and health left to protest usually have to settle for doing what they can to help push health care reform at the state level. But state politicians are heavily lobbied by the insurance industry too. And so it goes. . .

Incidentally, they should really be called “Health Insurance Horror Stories.” When mine was covered by the New Hampshire media, I noticed that they referred to it as an HMO horror story; however, I was paying premiums for my employer’s best plan and never did belong to an HMO. Most importantly, these stories are just one aspect of widespread and systemic failures in American health care, some of which I’ve summarized at http://www.hmoappeals.com/.

All That Glitters. . .

Rolling forward into mind almost all the time now,
A past denied its future climbs back into view.
I lie and watch it surge to spot the old and new.
Vagaries: the smile, half-hidden, of a third-grade girl
From long ago; a granite stone, half-buried in the dirt
Below a porch; a dream of bicycling and glimpse of lake
That’s shadowed nearly black with island shade.
I’m on the road again, but feel I’m being undermined.

Another surge. A wide arm of the ocean nears,
Inviting swift descent. Outside, the rain forgets its patter.
When it stops, a child’s outcry, mild and at play.
The outcry comes again and sweetly bends,
This time just to hear itself I think,
A child that stands inside a seeming field of solid ground in time.
My stricken mind just streams:
A river finger-thin to fall back toward the rollers climbing in,
Dimpling the low tide’s hard-packed glitter.

Paul Martin

. . . Are the Golden Toenails

It will be four years in December since I’ve been able to leave the house; I’m semi bedridden and without access to relevant health care. Too fragile for safe transport and with adaptive needs too unique for an institutional setting, no specialist will come to my residence. One exception: the podiatrist who comes once a month to cut my toenails.

There’s a good market for that specialty. I’m only fifty, but this is a service often needed by the elderly.

If you don't count the toenails, a case like mine, admittedly rare, is too much time and bother under an insurance-dominated medical system that is market-driven to the point of not simply profiting but profiteering at the direct expense of the financial and physical well-being of US citizens. There’s no financial incentive to serve someone like me; there’s no danger in neglecting someone like me. Choose your illness wisely.

Yet the same goes for cases that are not at all rare: for example, the millions of uninsured, underinsured, and retirees from employment of every sort who today are increasingly likely to lose the health benefits that came with their jobs as their former employers try to cope with ever rising health insurance premiums.

I hope people will include health care on the short list of issues they view as important at election time.

17 Comments:

Blogger crystal said...
I never thought about it before my eyes got bad, but there are lots of little things people do routinely that can be hard to do if you're unwell. Like you said, this must be what it's like to become elderly. My friend with chronic fatigue syndrome said that though he's in his 40s, he's beginning to feel closer to another guy in his 70s who lives in his building. I'm thinking of you.
2:10 AM  

Blogger hazzbuzz said...
That's a great poem, your poems are scary because they are so real.
I think anyone would
be affected by them because there is something there that if you've got a soul at all, you can't deny.

I've been reading back through the last posts and I still think that
principle of National Health Service makes common sense, then the focus is on what is needed rather than who is going to pay. I also think we are over reliant on drugs and the problems this has caused are well known, eg resistant superbugs and people on endless lists of medication with resulting side effects and little monitoring or review.

our NHS system is racked with
beaurocracy which makes it
inefficient, but I've been reading a book by Ricardo Semler who runs his company democratically with the basic idea that people are self interested, but they will work hardest and be most effective if given free rein to develop their own good ideas and manage themselves as much as possible. He says that small units of approx 10 people are the most efficient.

Patients and practitioners know
where the problems are and it is
frustrating not being able to do anything about it.We are thwarted by managers who feel they must bring in some impressive new plan to justify their existence.
10:45 AM  

Blogger hazzbuzz said...
sorry about the spelling
12:25 PM  

Blogger Oceanshaman said...
Have you seen Michael Moore's "Sicko" yet? If not, you'll like, given the basic tenor of your recent health care posts . . .
3:48 PM  

Blogger Oceanshaman said...
You can watch it online at any number of locations . . . joox, tvlinks, blockbustertv, etc . . .
3:49 PM  

Blogger ThursdayNext said...
My aunty has rhematory arthritis and it took her almost a year to convince the NYC system that she needed disability; the woman went to court unable to walk, and they still gave her a hard time. This woman paid city taxes for over 30 years...
4:04 PM  

Blogger mistipurple said...
can you write to the Ministers or something?
over here, we have a meet-the-people session every week or so at the community centres. the nominated/elected minister is in attendance, with a bunch of grassroot leaders. they will write letters of appeal to the relevant Boards, on matters eg. housing problem, health, legal issues, etc.

any help where it is heavily subsidised or free is good, even for podiatry care. they may not have the cure for you yet, but these various support can be helpful.
i may be suggesting irrelevant things in your unique situation. i just wish some people in the right places of authority can provide some form of help for you.
take care Paul, my thoughts are with you every day.
4:14 PM  

Anonymous motherwintermoon said...
Thank you for your series of Healthcare posts. This is a topic that needs the constant light of awareness. As person suffering from ill-health, I went many years without health insurance and proper health care, because I could not afford it. I recently posted about it, within a post, with a link to your site.

Love the poem.
7:45 PM  

Blogger Matthew said...
From what I've heard, health care is going to be *the* domestic issue of the next presidential election.
9:11 PM  

Blogger Paul said...
CRYSTAL: Thanks Crystal. That was the analogy I used too, in the early years of my illness. I was in my late thirties but the functional equivalent of someone in advanced old age.

HAZZBUZZ: Here I think the idea of a National Health Service is referred to as a “single payer system.” In brief, and without having really studied it, my tendency is to think that would be the best way to go too. The one thing for certain is that America has the capacity to do much better than what we’re doing.

Thanks so much for your comment on my poetry, really appreciate that.

I hadn’t noticed anything with the spelling, but between the Lime Hawk Moths and flooding, I couldn’t really blame you for the occasional typo...

OCEANSHAMAN: Yes, one of those things I wish that I could do/had time for. (Not enough productive hours in my day and my down time is basically non functional – even for something that passive.)

THURSDAYNEXT: I hear you. That sense of betrayal is something you inevitably feel left in these sorts of situations: you work hard all your life, take care of your health, and in the end, when it turns out you need help, are let down.

MISTIPURPLE, thanks for thinking of me. You’re right though; after fourteen years of dealing with this, it’s actually about as close to accurate as it can get to say that my family and I have tried everything and are fully aware of our options such as they are.

MOTHERWINTERMOON, thanks so much, I just now stopped by at your blog –

MATTHEW: I think it’s finally reached a critical mass where enough people are being directly affected, one way or another, that politicians will have to at least pay lip service to the issue until the administration starts bombing Iran.
11:58 PM  

Anonymous Mark said...
Paul,
This is very important information and critical that we get the word out and the vote out. We should be ashamed of our so called health care system!
5:35 PM  

Blogger krystyna said...
Hi Paul!
I'm reading, (rather study) this problem. I need more time to understand correctly.. Thanks for sharing these last your posts and thanks for this link:
http://www.hmoappeals.com/
Now, I know more about this difficult issue.
I'll be with contact.
Take care and keep your faith!
6:02 PM  

Blogger Paul said...
MARK: We really should be. I've noticed that over these posts a number of comments from outside the US basically have people scratching their heads - like how is it that we've been putting up with this?

KRYSTYNA, glad you're looking into this issue. It can end up personally affecting any of us.
6:08 PM  

Blogger timjamz said...
Paul, I can relate well with your angst against the health-care "industry." My brother's other half is paraplegic - a victim of a disease known as transverse mylitis. At eleven years old, she developed flu-like symptoms - one day, as she turned to get out of a car, her legs no longer worked. The spinal tissue inflammation inspired by the disease caused her spinal cord to be severed just from the pressure of standing and twisting at the same time. She (and everyone else) never saw it coming. They thought she just had the flu, which are the only symptoms... a depressed immune system.

As with nearly every patient with any disease which is not easily treated, there is not a great deal of effort put toward those, for two reasons. One is money - there are just not enough resources poured into research regarding "untreatable" diseases. The second is money - folks with these diseases are quickly uninsured and fall into reliance on the government system for care.

The sad fact is that those who take the Hippocratic Oath are forced into the health-care "industry." It's a business. As such, the goal is to make jobs and swirl money. Peoples' lofty ideals of truly making a difference for people are quickly squashed by the bottom line - though a rare few fight through it, and give up all of their material "success" to actually make a difference. Much like exceptional artists, they are rarely honored while they still live.

What would be great would for there to exist a circumstance where those who truly have a talent and will to heal, could do so without fear of a lawsuit, and without the headaches associated with the "industry," and still be compensated compensatory with the salary of doctors, as they are now. If this circumstance were created, we would have health-care for all.

The root of the problem is that our system of law is created in such a way that lawsuits are easy - someone dies, someone sues, and either to avoid and/or incur a judgement as a defendent, health-care businesses cough up huge sums of cash on a regular basis. Again, it's a business - and the costs (and profit margins) fall on the consumer.

Unfortunately, I'm not sure how current politicians are going to or would even be willing to make that circumstance a reality. I'm also not sure how I, or anyone like me, will ever be able to fill the decision-making seats occupied by the current people filling them. It's a tight-knit operation.

Anyway, in a sense I feel your pain - or at least can put my head around it. My sister-in-law, Roxane, has fallen victim to this same "system of care" to which you're referring. Due to the fact she's been paraplegic for more than twenty years, and been maltreated in the "facilities" she's been in and out of, she has developed a degenerative bacteria in her bone marrow around various fractures. When she's almost dead, they have to take her in at the emergency room... and then they "care" for her, just enough to make her not "almost dead" and release her.

To me, just the words "health care" cast a shadow.

Tim
9:59 PM  

Blogger Paul said...
TIMJAMZ: Sorry to hear about your sister in law. People like she and I and, as you say, the health "care" we get... I know exactly what you mean, that word rings false to me to the point it's hard to use the phrase. When your illness isn't a money maker, the "care" you receive is apt to be superficial at best. So much more to my story, and I'm sure hers, and millions of others, in that regard.
9:28 AM  

Anonymous Nancy said...
I just read all your previous posts about health care. The crisis of health care in this country is frightening. It's become what should be more accurately called 'selective health care', with business people of no medical experience doing the selecting. It all makes me feel very helpless and vulnerable, and my health issues are rather minor. This issue is definately at the top of my political interests.
10:53 PM  

Blogger Paul said...
NANCY, thanks. These days I find myself wondering what the federal government is for, exactly. Public education and the environment are two additional fundamental social goods we're neglecting.

Somehow we never have enough money for this stuff; at the slightest suggestion of investing in these areas, we're warned that our taxes would have to be increased.

Yet the government has no problem spending what's expected to surpass 600 BILLION dollars of taxpayer money in war spending during 2008.

Yeah, that's been worth every nickel...
6:55 PM  

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